The Selective Mutism Information and Research Association provides support and advice about selective mutism, including training for parents and health care professionals. It also hosts annual conferences and training sessions related to the disorder for parents and professionals. The charity has an active facebook group having members from about 50 countries across the globe. SMIRA helps fight isolation among selective mutism sufferers and encourages sharing of ideas among people experiencing similar selective mutism-related issues at home or school. It aims at giving information to health and academic professionals involved in helping out individuals affected by the disorder. SMIRA is a UK-based charity that was founded to offer support to families of children with selective mutism. Its mission is to promote advocacy, research, and acceptance of selective mutism as a debilitating condition. It aims at broadening public understanding and awareness of selective mutism. Selective Mutism Foundation is a non-profit organization founded in the year 1991. It also offers videos and other resources apart from conducting workshops and awareness events for individuals and families affected by the disorder. iSpeak aims at busting myths about selective mutism and breaking the stereotypes attached to the disorder. It has published a book named ‘ Selective Mutism In Our Own Words’, which has first-person accounts of the effects of the disorder by nearly 30 teens and adults with selective mutism and many parents as well. It also strives to educate the public, media, health care professionals, and academia through real life experiences. iSpeak aims to provide selective mutism patients a platform to express themselves. Carl Sutton who was affected by selective mutism for many years during his childhood. ISpeak is a voluntary organization run by Dr. The main aim of the group is to guide parents and teachers with the help of books on the condition and aiding children affected by selective mutism.
The Selective Mutism Group provides information about the disorder through their website and is part of the childhood anxiety network. Organizations Providing Support for Selective Mutism However, children should be very careful online and not share personal details or never agree to meeting people encountered in the virtual world. Older children / teens may approach mutual support groups on social media, such as facebook. The childline helps children dealing with unhappiness, depression, or bullying-related issues. Adults can also go to online support groups and forums and interact with other adults who suffer from selective mutism.Ĭhildren with selective mutism can contact the childline via phone or email for immediate support. Adults with selective mutism need to see therapists and undergo talking therapy or counseling with the help of their GP.
Parents need to arm themselves with appropriate literature related to selective mutism. Support is widely available for parents to help them access speech therapy and psychological help for their children. The school and family of the affected child should work closely with the health care team for the treatment to be effective. Children with selective mutism need the help of a multidisciplinary team of health care professionals that includes a pediatrician, child psychologist or psychiatrist, and a speech – language therapist. Selective mutism has garnered a lot of attention as a childhood disorder that can have significant repercussions on the children and their families.
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